Who is Anabella?

Anabella is the heart and soul behind our center. She is more than a name — she is a daughter, a stepdaughter, a friend, and a joyful child whose life has inspired a mission to change the world for families living with rare genetic syndromes.

When Anabella, who lives in Ecuador, was diagnosed with Williams syndrome, her family quickly realized how few resources and supports existed for children with rare genetic conditions. They experienced firsthand the frustration of navigating a complicated healthcare system, the challenges of accessing specialists, and the overwhelming feeling of not knowing where to turn.

Yet, through every obstacle, Anabella’s light never dimmed. Her laughter, music, and boundless curiosity reminded everyone around her that children with Williams syndrome have extraordinary gifts to share. Her story became the spark for something much bigger — a commitment to ensure that no family would have to face this journey alone.

A Personal Journey of Love and Hope

Anabella’s story is deeply personal. Living in Ecuador, her family often had to travel long distances to seek care and answers, moving between hospitals, communities, and even countries in search of specialists.

It was out of this experience that her mom, Ana and Schwann came together to create Anabella’s Williams Syndrome Center. We built it with one goal in mind: to make sure no family feels lost or unsupported the way we once did. What started as a response to one child’s journey has grown into a mission to support families everywhere.

Anabella Today

Anabella is a vibrant, loving child who continues to inspire everyone she meets. Her resilience teaches us every day that rare does not mean without value — it means unique, extraordinary, and deserving of celebration.

She reminds us why we exist: to bring families together, to offer care and hope, and to create a future where children like Anabella can thrive — whether in Ecuador, the United States, or anywhere in the world.